Federated Human Data Community

Community goal

The goal of the ELIXIR Federated Human Data (FHD) Community is to promote and facilitate the creation of a federated ecosystem of interoperable services. This ecosystem enables population-scale genomic and biomolecular data to be accessed across international borders, accelerating research and improving human health.

To achieve this goal, the FHD Community provides coordination across ELIXIR Nodes, ELIXIR-funded projects and internationally funded initiatives that contribute to this shared vision.

Join our community to collaborate on cutting-edge human data research.

Community objectives

  • Facilitate the creation of services for the secure submission, archival and analysis of sensitive human data across Europe
  • Promote coordination among European institutes dedicated to or aiming at providing such services, especially within the Federated European Genome-phenome Archive (FEGA)
  • Disseminate good practices for sensitive human data management
  • Ensure alignment across the European landscape of projects and initiatives
FHD model
Figure 1: The shared vision of the ELIXIR Federated Human Data Community is to operate a Europe-wide network of sensitive data archives that are able to function interoperably based on common interfaces rather than any single technological solution.

Activities

ELIXIR Node deployments across the FHD infrastructure

Many ELIXIR Nodes provide local, regional, and/or national infrastructure components to support the implementation of the shared vision for ELIXIR FHD. Below we provide links to these ELIXIR Node-specific FHD websites:

ELIXIR FHD regular activities

Regular FHD meetings provide a forum to present, discuss and coordinate progress across multiple funding streams, ensuring progress towards the shared vision is tracked and documented.

FHD Community call: This takes place on the first Tuesday of each month at 14:00 CEST.

The standing agenda includes:

  • Presentations from ELIXIR Nodes on progress towards the FHD vision
  • Updates from FHD-related projects such as FEGA and the European Genomic Data Infrastructure (GDI)
  • Invited presentations from related projects delivering infrastructure components across the Nodes
  • Discussions of community topics of interest

Mailing list: fhd@elixir-europe.org

Leadership

Profile picture for user tk2
EMBL - European Bioinformatics Institute (EMBL-EBI)

Additional Community support

  • Gabriele Rinck (ELIXIR EBI)
  • Teresa Daltri (ELIXIR Spain)
  • Amy Curwin (ELIXIR Spain)
Find out more

Contact Serena Scollen (serena.scollen@elixir-europe.org) to learn how you can get involved with ELIXIR's work with human data, and how this work can help you.