Federated Human Data Community

Vision: Our vision for the ELIXIR Federated Human Data (FHD) Community is to create a federated ecosystem of interoperable services that enables population scale genomic and biomolecular data to be accessible across international borders, accelerating research, and improving the health of individuals resident across Europe. Together, the components of FHD provide a framework for the secure submission, archival, dissemination, and analysis of sensitive human data across Europe, and wider. 

Achieving this vision: FHD provides coordination across a number of EU, ELIXIR Node, and internationally funded projects that drive towards delivery of the shared vision. The overall objective is to provide a suite of interoperable services to deliver the vision, focussing on the interfaces that are required for the federated infrastructure rather than any single technology.

FHD model
Figure 1: The shared vision of the ELIXIR Federated Human Data Community is to operate a Europe-wide network of sensitive data archives that are able to function interoperably based on common interfaces rather than any single technological solution.

Activities

ELIXIR Node deployments across the FHD infrastructure

Many ELIXIR Nodes provide local, regional, and/or national infrastructure components to support the implementation of the shared vision for ELIXIR FHD. Below we provide links to these ELIXIR Node specific FHD websites:

ELIXIR FHD regular activities

As the work towards achieving the vision of ELIXIR FHD is supported by many different funding streams the regular FHD meetings provide a forum for the presentation, discussion, and coordination across these, enabling the progress towards the vision to be tracked, documented, and discussed at regular intervals.

There are two FHD meetings held per month. Both meetings are open to ELIXIR members, and ELIXIR FHD Community partners:

ELIXIR FHD strategic meeting

First Tuesday of the month, 2pm CEST   

The standing agenda for this meeting consists of:

  • presentation(s) from the ELIXIR Nodes on progress towards the vision of FHD
  • reporting of technical progress made in the ELIXIR FHD Strategic Implementation Study
  • updates from the ELIXIR CONVERGE / Beyond One Million Genomes (B1MG) projects (rotating one per month)
  • invited presentations from FHD related projects delivering infrastructure components across the ELIXIR Nodes

Mailing list: fhd [at] elixir-europe.org

ELIXIR FHD technical meeting

(Cadence to be decided, potentially 3rd Tuesday of the month, 2pm CEST)

The standing agenda for this meeting consists of:

  • technical discussion of activities in the ELIXIR FHD Strategic Implementation Study
  • technical discussion of activities in the ELIXIR CONVERGE project

Agenda document (including meeting connection details) (document needed)

Leadership

Jordi RamblaJordi Rambla
(ELIXIR Spain)
Dylan SpaldingDylan Spalding
(ELIXIR Finland)
Thomas KeaneThomas Keane
(EMBL-EBI)
Giselle Kerry
Giselle Kerry
(ELIXIR Hub)

Find out more

  • Contact Serena Scollen (serena.scollen [at] elixir-europe.org) to learn how you can get involved with ELIXIR's work with human data, and how this work can help you.